Fun in the Sun!

Our weekend so far our neighborhood pool opened today so of course they boys had me up at 8 am begging to go! I held them off until 10:45.The second pic is after Braden and I had a long talk about how beautiful his toes were. I found him sitting in the corner yelling at his feet he was saying “I don’t love you toes, you hurt me” and asking if I would get him new toes. It broke my heart. (His 3rd toe didn’t develop properly. It tucks pretty badly under his 2nd toe causing pain)
Beats for Braden's photo.
Beats for Braden's photo.

Growing Up!

Braden is officially done with special education preschool! I am so happy and sad all at the same time! His amazing teachers, Ms. Stephanie, Mrs. Elisa, Mrs. Tracie and Mrs. Melanie have helped to shape Braden into the sweet, loving little boy that he is. I am forever grateful for their compassion and love for Braden. The picture is Braden and Mrs. Elisa when I picked Braden up today.. I was a crying mess! I will miss them so much!
Photo: Braden is officially done with special education preschool! I am so happy and sad all at the same time! His amazing teachers, Ms. Stephanie, Mrs. Elisa, Mrs. Tracie and Mrs. Melanie have helped to shape Braden into the sweet, loving little boy that he is. I am forever grateful for their compassion and love for Braden. The picture is Braden and Mrs. Elisa when I picked Braden up today.. I was a crying mess! I will miss them so much!

Orthopedic Appointment

The appointment today with the Orthopedic Surgeon went great! Both his Kyphosis and Scoliosis are mild and they are just going to watch him every 5 months for changes. If we go back in 5 months and there are significant changes, then they will figure out a way to brace him with his tubie. He was not happy while waiting for the doctor. He was scared. He perked up once he met the doctor and realized no owies.
Beats for Braden's photo.

Happy Mother’s Day

Photo: I am so blessed! Happy Mother's Day everyone! Braden is doing great! Orthopedic surgeon appointment is Tuesday. I'll update you all with that appointment as soon as I can. Thank you for the love and prayers for not only Braden, but our family. We love you all.

I am so blessed! Happy Mother’s Day everyone! Braden is doing great! Orthopedic surgeon appointment is Tuesday. I’ll update you all with that appointment as soon as I can. Thank you for the love and prayers for not only Braden, but our family. We love you all.


Great Weekend

Photo: Braden had an awesome weekend! We are loving this weather even though we don't get to enjoy it too long each day. Our pool in the neighborhood should be opening soon and then Braden will be able to enjoy the outdoors a little more since the water will help keep him cool.</p>
<p> I cannot say enough good things about Disney Infinity!! Those with young kids probably know all about Disney Infinity! Carder and Braden's Nana bought it for them for Christmas and our family has slowly bought some of the little characters to go with it. Long story short, Our account got all messed up and Braden lost all his little characters. I have spent days going back and forth via email to get it straightened out. Its finally fixed and I have a happy boy!! Since Braden isn't able to be outside much, he relies on his Ipad for entertainment. It is also a WONDERFUL therapy tool for him! He is learning to write his letters now. The picture below is right after we got everything fixed and he realized all his characters were back <3 I love him to pieces! Thank you all for loving him so much too!!

Braden had an awesome weekend! We are loving this weather even though we don’t get to enjoy it too long each day. Our pool in the neighborhood should be opening soon and then Braden will be able to enjoy the outdoors a little more since the water will help keep him cool.

I cannot say enough good things about Disney Infinity!! Those with young kids probably know all about Disney Infinity! Carder and Braden’s Nana bought it for them for Christmas and our family has slowly bought some of the little characters to go with it. Long story short, Our account got all messed up and Braden lost all his little characters. I have spent days going back and forth via email to get it straightened out. Its finally fixed and I have a happy boy!! Since Braden isn’t able to be outside much, he relies on his Ipad for entertainment. It is also a WONDERFUL therapy tool for him! He is learning to write his letters now. The picture below is right after we got everything fixed and he realized all his characters were back I love him to pieces! Thank you all for loving him so much too!!


Genetic Panel Results

Photo: Awesome news! Braden's genetic panel for Cardiomyopathy and left non compaction cardiomyopathy came back. There is no genetic issues in the panel. This means that he likely does NOT have a secondary genetic condition causing his heart defects like originally thought! We are officially done with genetic testing! We already know and love the boy he has become. After this panel, there is no need to continue searching. The Genetic Counselor called him our perfect storm . That Is exactly right. He is perfect, he is exactly who God intended him to be!

Awesome news! Braden’s genetic panel for Cardiomyopathy and left non compaction cardiomyopathy came back. There is no genetic issues in the panel. This means that he likely does NOT have a secondary genetic condition causing his heart defects like originally thought! We are officially done with genetic testing! We already know and love the boy he has become. After this panel, there is no need to continue searching. The Genetic Counselor called him our perfect storm . That Is exactly right. He is perfect, he is exactly who God intended him to be!


We Are Back!

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Its been a long while since we have posted here! Our campaign with COTA is now over and we were able to raise some money for Heart transplant expenses! Braden has been doing fantastic! Each day truly is a blessing. Since we have been gone, Braden now has a facebook page. www.facebook.com/beatsforbraden .  I will try to keep both his website and his facebook page current! Thank you all for the continued prayers!