I am so blessed! Happy Mother’s Day everyone! Braden is doing great! Orthopedic surgeon appointment is Tuesday. I’ll update you all with that appointment as soon as I can. Thank you for the love and prayers for not only Braden, but our family. We love you all.
Braden had an awesome weekend! We are loving this weather even though we don’t get to enjoy it too long each day. Our pool in the neighborhood should be opening soon and then Braden will be able to enjoy the outdoors a little more since the water will help keep him cool.
I cannot say enough good things about Disney Infinity!! Those with young kids probably know all about Disney Infinity! Carder and Braden’s Nana bought it for them for Christmas and our family has slowly bought some of the little characters to go with it. Long story short, Our account got all messed up and Braden lost all his little characters. I have spent days going back and forth via email to get it straightened out. Its finally fixed and I have a happy boy!! Since Braden isn’t able to be outside much, he relies on his Ipad for entertainment. It is also a WONDERFUL therapy tool for him! He is learning to write his letters now. The picture below is right after we got everything fixed and he realized all his characters were back I love him to pieces! Thank you all for loving him so much too!!
Awesome news! Braden’s genetic panel for Cardiomyopathy and left non compaction cardiomyopathy came back. There is no genetic issues in the panel. This means that he likely does NOT have a secondary genetic condition causing his heart defects like originally thought! We are officially done with genetic testing! We already know and love the boy he has become. After this panel, there is no need to continue searching. The Genetic Counselor called him our perfect storm . That Is exactly right. He is perfect, he is exactly who God intended him to be!
Its been a long while since we have posted here! Our campaign with COTA is now over and we were able to raise some money for Heart transplant expenses! Braden has been doing fantastic! Each day truly is a blessing. Since we have been gone, Braden now has a facebook page. www.facebook.com/beatsforbraden . I will try to keep both his website and his facebook page current! Thank you all for the continued prayers!
Due to Beats for Braden working with Cota.org, this site will be redirected to a new page during the year long fundraising campaign. Please visit http://www.cotaforbradenk.com/ for further information.